My daughter has pain in her lower abdomen, almost pelvic and in the area that would most likely be the area of the ovaries. This pain is constant(throughout the entire month), usually a 3 (on the 1-10 scale) but sometimes higher, rarely is it past a 7. She describes the pain as sharp and stabbing; occasionally dull and achy with the sharp and stabbing. When she has this pain, the color drains from her face and her cheeks become somewhat flushed.
Could Von Willebrands cause this kind of pain?
We lived in the Puget Sound of Washington all of her life until about a year ago when we moved to Eastern Montana. Her pain became worse and really started to affect her life when we moved to Montana. The elevation where we lived in Washington was under 300, the elevation in our new town is almost 3000. We have been back in Washington for a few months seeing specialists at SCH and her pain is once again not as bad, mostly staying in the 1-3 area of the pain chart.
Can altitude affect a person with Von Willebrands?
TIA for any info on these 2 questions!
(She has had scans, testing and multiple exams from several different specialists, it took a gynecologist to ask about bloody noses and menstrual cycles to even be offered this test.)
Well I have always had very bad times of the month but the pain shouldn’t just stay. But altitude did affect my week walled veins this summer. I went from always living in Iowa to going into the mountains of Colorado for vacation and had blowouts on the way up. So I think that something week could bulge possibly. Just an idea.
I have no idea about altitude, but she could have haemorrhagic ovarian cysts (which is not uncommon with females and v W) and the pain will get worse mid-cycle when ovulating. I've had it and it can be excruciating. Has she had menarche yet? I've heard altitude sickness happens around 8000 feet, I'm not sure if you're working in feet or metres, but if it's metres hmmm... altitude sickness can cause nosebleeds and micro-brain bleeds... Interesting topic! xx I'd ask again when she's having the pain symptoms for the Gynaecologists to expedite a timely trans-vaginal ultrasound to see if there is any ovarian swelling or intra-cavity loss. All the best and keep us posted. Helen x
When you say "week walled veins" and "blowouts" are you referring to bruises? I've never noticed any bruising. Michele Brazelton said:
Well I have always had very bad times of the month but the pain shouldn't just stay. But altitude did affect my week walled veins this summer. I went from always living in Iowa to going into the mountains of Colorado for vacation and had blowouts on the way up. So I think that something week could bulge possibly. Just an idea.
Question: Would haemorrhagic ovarian cysts show up on CT scans, X-ray or ultra sound? She's had all three and I've been told that all three are "normal". They are not wanting to do a trans vaginal U/S due to her age and we leave for Montana on Sunday and don't have a gynecologist for 80 miles! :( I may ask her gynecologist when we come back in February and see what she says, great tip!!
Yes, she has had menarche, she started the day after her 11th birthday. She's now 13.
I was speaking of feet not meters but not necessarily "altitude sickness". Specifically I'm curious if higher altitudes affect people with VWB. (She's had nosebleeds in both altitudes.)
Nellie said:
I have no idea about altitude, but she could have haemorrhagic ovarian cysts (which is not uncommon with females and v W) and the pain will get worse mid-cycle when ovulating. I've had it and it can be excruciating. Has she had menarche yet? I've heard altitude sickness happens around 8000 feet, I'm not sure if you're working in feet or metres, but if it's metres hmmm... altitude sickness can cause nosebleeds and micro-brain bleeds... Interesting topic! xx I'd ask again when she's having the pain symptoms for the Gynaecologists to expedite a timely trans-vaginal ultrasound to see if there is any ovarian swelling or intra-cavity loss. All the best and keep us posted. Helen x
TIA for any info on these 2 questions!