Heads up! Happening soon


Shortly, this community’s address will change temporarily to
forum.LivingWithVWD.org .
Please make a note of that address and go there when livingWithVWD.org doesn’t work for you.

We are installing a landing page to which first time visitors will see before they join the community. Click here to see what we’ve done on our Eagle Syndrome community: this is what we are talking about.

So why are we doing this? Well, there are a few reasons:

  • We want to give a first impression of a community that is dynamic and welcoming to newcomers, something that we’ve heard that the home page doesn’t always do.
  • We’d like to attract more people to this community because our mission is “to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them”.
  • We hope to make this community more easily “findable” by the people who need it. To make it findable, we need a home page that Google and other search engines can zero in on and rank highly. (In the “biz”, that’s called “SEO”.)

We hope you like the new page when you see it. If you have any comments or suggestions as our designer is in the final stage of the design, we’d love to hear from you. (For that matter, we always love hearing from our members!) Simply post below, or email us at modsupport@bensfriends.org.

TJ and Seenie from Admin and Modsupport

copy to @trust_level_0