Frustration

Perth_Mum
Tue, 04 Nov 2014 00:27:05 +0000
General

VWD has to be the most frustrating disease there is!!!!!!!!!!!

Here I am thinking that going to back for my results would be the answer that I am looking for but no. It's not. All he can tell me is that I have low VWF which presents as having VWD but because your levels change daily he is unable to 100% diagnose it as being VWD but he is certain that is what I have but if I don't it is clear that I do in fact have a bleeding disorder.

My iron count is currently at 60 but when my GP tested it it was at 3. I know my levels can not fluctuate that much so im curious as to what he tested that she didn't? Im back to see my GP next week so hopefully she can give me some better answers.

He has allowed me to take aspirin for my heart problems but says if you start bleeding from anywhere or longer than normal stop taking it immediately and go to a hospital.

So basically now I have more questions and even less answers than I want.

I guess living in Perth Western Australia we do not have the specialists here that are required for specific bleeding disorders.

7 posts - 6 participants