If you’re experiencing unusual bleeding, frequent nosebleeds, or heavy periods, you might be dealing with von Willebrand disease (VWD). But getting the right diagnosis and care starts with one important step: choosing the right doctor.
Many people assume the first doctor they see is the only option. But with a rare condition like VWD, that can lead to frustration and delays. At Ben’s Friends, we encourage patients to advocate for their own health — and that includes finding a doctor who truly supports and understands your condition.
What to Look for in a VWD Doctor:
- Believes Your Symptoms
You need a doctor who listens and takes your symptoms seriously — not one who dismisses them. - Listens and Explains Clearly
Look for someone who welcomes your questions and helps you understand your condition and care. - Understands VWD (or Is Willing to Learn)
Ideally, they know VWD well — but openness to learning and collaborating matters just as much. - Makes You Feel Comfortable
Respect and clear communication make a huge difference, especially when managing a long-term condition. - You Trust Them
If something feels off, don’t ignore it. Trust is essential. - Offers a Clear Treatment Plan
Your doctor should explain what treatments they recommend and why — and be ready to adjust as needed. - Works Well with Other Providers
VWD care may involve multiple specialists. Make sure your doctor is a team player.