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And for those not in the US, most countries have their own Haemophilia foundations, google or the World Haemophilia Foundation should be able to help you track down your organization. While HFs have the word ‘Haemophilia’ in them, ey represent and advocate for people with all types of bleeding disorders. And don’t forget, vWD sufferers are the numerically largest around the world so seek out support if you need it, you’re certainly not alone!