Today was finally the day after months of waiting to see my Haematologist!
I have been seeing a different GP lately due to Heart problems. I have been having really bad palpitations. So I have done the Halter Monitor and echo however she said it could be due to the fact that my iron count currently sits at 2! So she has held off with the referral to the Cardiologist waiting to see if the iron infusion makes a difference.
Anyways, she wrote all this in my current referral to see Dr Baker and finally get him to confirm the diagnosis of VWD and also which type as she is unable to prescribe me anything heart related until she has his CONFIRMED diagnosis.
He is now running the tests (I need to go for them tomorrow) and looks like I could have an answer next time I see him which is Saturday. He is now also checking for an autoimmune disorder as my white cell count is low, liver enzymes are abnormal yet my iron stores count is normal. My old GP said I have chronic anaemia but he said because my iron stores are within normal range that would point more towards an iron deficiency rather than anaemia. Either way I still need an iron infusion. With 2 kids its hard to nap during the day and staying awake while i am running on empty is seriously hard.
So my faith in him has now been restored and I am once again happy to see him. Now I just need to go and get 15 tubes of blood taken and hopefully have my answer!